TAHOE/TRUCKEE, Calif. — The Multiple System Atrophy Coalition encourages participate in this year’s World MSA Day on Oct. 3, 2013.
Each year members of the global multiple system atrophy community walk one mile and light a candle at 8 p.m. for one hour to raise awareness for this rare disease.
“The Multiple System Atrophy Coalition is pleased to join other MSA organizations and individuals throughout the world in recognizing and participating in World Multiple System Atrophy Day,” said Judy Biedenharn, co-President of The MSA Coalition. “Multiple System Atrophy is a little-known, rare disease affecting about 15,000 Americans and perhaps several hundred thousand others around the globe.
“With no celebrities known to have MSA, it is difficult to generate public interest and media attention. World MSA Day offers the chance to unite as a community and to build awareness. We ask all patients, caregivers, and their friends and family members to join us in this important day of activities.”
In the United States purple has become the official color for multiple system atrophy awareness. Ideally, during World MSA Day activity participants will wear purple shirts. The MSA Coalition is now offering purple MSA T-shirts through its website at www.Multiple-System-Atrophy.org.
The shirts cost $25, (plus shipping and handling) and proceeds go to The MSA Coalition to support research, awareness and advocacy initiatives.
ABOUT THE MULTIPLE SYSTEM ATROPHY COALITION
The Multiple System Atrophy Coalition is a positive beacon of hope standing up to a little known, rare, insidious disorder. Made up of dedicated volunteers, The MSA Coalition has a primary purpose of encouraging and funding research to find a cure. The Coalition also provides much-needed patient and caregiver support, educational resources, and advocacy to create awareness and to fight for issues important to the MSA community. At present, approximately 75 percent of all donations go directly into a dedicated Multiple System Atrophy Research Fund, which now supports a research grant program. The MSA Coalition also has a world-class scientific advisory board (SAB) to review and award research grants to the most promising MSA research proposals. The remainder of proceeds from donations is used to fund educational, support and advocacy initiatives, with a small percentage going to administrative expenses.
For more information or to donate to The Multiple System Atrophy Coalition, visit www.MultipleSystemAtrophy.org.