Frog Creek Run: Local family’s fight to find a cure for rare kidney disease |

Frog Creek Run: Local family’s fight to find a cure for rare kidney disease

John Hassan/community submitted photo

SODA SPRINGS, Calif. – This 10-mile trail run/hike was the brainchild of Angela Costamagna, a local resident of Truckee, whose nieces and nephew suffer from a rare genetic disease known as Hyperoxaluria. Currently, the only treatment for this disease is a double kidney and liver transplant. The Oxalosis and Hyperoxularia Foundation (OHF), is fighting to find a cure. Research is the only solution to finding a cure and in order to raise money, Angela, a long-distance, trail runner, created a trail run/hike in the beautiful Sierra Nevada Mountains to raise money and awareness.

The run celebrates Costamagna’s nephew, Colby Clement. When Colby was only 5 months old, his parents, Glen and Becky, repeatedly took him to their local pediatrician because of his flu-like symptoms. After numerous visits and extensive blood tests he was diagnosed with kidney failure and flown via Life Flight to UC Davis Medical Center’s Pediatric Intensive Care Unit. However, too small for a kidney transplant – he spent the next 10 months on dialysis, fighting infections and complications. All the while, every effort was made to increase his weight and growth so that he could be eligible for an organ transplant. He was an extremely sick little boy and there were many times his parents thought they would lose him. Fortunately, he was able to accept a kidney from his dad and a liver from a deceased child donor.

Colby was the first Hyperoxaluria case that UC Davis Medical Center had ever seen. Once his parents became aware the disease was genetic, they immediately tested their other children. Regrettably, their two daughters are also afflicted with this disease and although, their condition is not as extreme as their Colby’s, if no cure is found, they too, will need a double organ transplant. 

To date, there are a handful of families throughout the Sacramento and Bay area that are afflicted with this disease. Please consider a donation toward this very worthy cause. It is not only tax deductible but will make a huge difference for this Truckee family and others suffering from this insidious disease.

The run/hike will take place on the historic Donner Summit, home to the spectacular Pacific Crest Trail and world renowned rock climbing. A mountain Mecca for all outdoor enthusiasts.

– Submitted via

Saturday, Oct. 2, 2010

9 a.m. start, registration begins at 7 a.m.

1 Billy Mack Flat Road, Donner Pass

Pre-register on for $40,

$40 day of event. All participants receive a T-shirt with registration fee.

10-Mile Run/Hike through the Sierra Nevada Mountains.

Babysitting available

Barbecue following the run

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